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| How can we even tell you to make you understand, Our daily trial's and hardship's for they go hand and hand. Although we struggle with daily pain and ask each other why, The only answer that we can get, comes from beyond the sky...... One Small Group |
| Who has PPS? Survivors, doctors, pastors, graphic-designers, journalist, teachers, song writer, artist, entertainers, movie stars, president, the list goes on and on. These are just some of who you will meet at our Post Polio Support Group. We belong to a very unique group of people. People who have experienced a deadly disease, one they thought they had beat, only to have it leave us with Post Polio Syndrome. Even though PPS weakens us we still fight on. Because we are very strong people. We have a support group that meets quarterly. Open to anyone who has had Polio or experiencing Post Polio Syndrome. Our group has a age range of 40’s to 80’s. Where: Contact: firstcoastpostpolio@ yahoo.com <http://firstcoastpostpolio.com> mysupportjax.com –Look for Polio |
Our Staff of Directors:
President: Jim Powell
Vice President: Janice Askwith
Treasurer: Phyllis Moss
Secretary: Sheila Kilgore
Sunshine committee: Sue Massey
Board of Directors
Dr. Stuart Caplin
Carolyn Jones
Eulie Nahm
Founder 1990: Sue Bridges
jimpowell_2@yahoo.com
Phone: 904-396-1238
Fax: 904-396-4447
President: Jim Powell
Vice President: Janice Askwith
Treasurer: Phyllis Moss
Secretary: Sheila Kilgore
Sunshine committee: Sue Massey
Board of Directors
Dr. Stuart Caplin
Carolyn Jones
Eulie Nahm
Founder 1990: Sue Bridges
jimpowell_2@yahoo.com
Phone: 904-396-1238
Fax: 904-396-4447
"WE ARE STRONGER WHEN TOGETHER" Remember our logo! We can't make it without you. We are here for you. |
"WE ARE STRONGER WHEN TOGETHER"
Members at our September 12, 2009 Meeting
Standing: Bill Hamilton, Bob Eckert, Kathy Hutchinson, Doris McCullough,
Betty Loyd, Carol Gilbert, Bill Gilbert, Carl Cameron, Pat McCullough
Seated: Phil Eckert, Jerry Jordan, Sheila Kilgore, Janice Askwith
Standing: Bill Hamilton, Bob Eckert, Kathy Hutchinson, Doris McCullough,
Betty Loyd, Carol Gilbert, Bill Gilbert, Carl Cameron, Pat McCullough
Seated: Phil Eckert, Jerry Jordan, Sheila Kilgore, Janice Askwith
LOOK WHAT YOUR MISSING!
COME JOIN THE FUN AT OUR
NEXT MEETING.
Janice Askwith and Betty Loyd
enjoying their time together.
COME JOIN THE FUN AT OUR
NEXT MEETING.
Janice Askwith and Betty Loyd
enjoying their time together.
| To read more about this years campaign, please go to www.post-polio.org |
New Member Phyllis
Sands and her husband
John. Read her story
under Feature Story tab.
Sands and her husband
John. Read her story
under Feature Story tab.
Phyllis Moss,
Treasure
Janice Askwith,
Vice President
Sheila Kilgore,
Secretary
Jim Powell,
President
Have a Blessed Memorial Day! |
The opinions expressed in this publication are those of the individual writers and do not
necessarily constitute an endorsement or approval by First Coast Post Polio Support
Group. If you have personal medical problems, please consult your own physician.
| Jackie Hammershahr in yellow sweater. Friend who helps Jackie with everyday task Ms Lisa Jackson. Thank You Lisa. |
| Mary Lou Norton and Jessica Hoagic |
| My husband is the caretaker of our flowers around our yard. Here is just a sample. |
MAY MEETING went great. Thank you to all the members who attended. You made
my day! I was so happy to see each and everyone of you. Our guest was very
informative. I believe each of us went away with some new knowledge of exercise at
home to help with the pain and stress. Below you will find a outline of Dr Davis's
presentation.
A synopsis of the presentation from Dr. Anita Davis
Here are the key points that were brought out in the presentation:
1. Using exercise as a mechanism for maintaining independence.
A. Weights and resistance bands
B. Aquatic exercise
C. Modified aerobics
PPS patients should try to keep accelerated heart rate no more than 60% of normal rate.
The equation to determine this is 220-your age x 60.
1a. Managing fatigue is just as important as managing exercise. If you cannot do your normal routine the
next day, you might want to consider cutting your exercise program down. Exercise 2-3 times a week.
1b. The way to stay with an exercise program:
a. Set goals
b. Schedule you exercise time in your planner
c. Realize that it might take up to 12 weeks to see any
results so stay with it.
2. Work on steadier breathing
A. Make sure you are breathing during your exercise program and not
holding your breath.
B. Try breathing exercises of slow breaths in by mouth and exhaling by
mouth slowly trying to last for at least 4 seconds.
Beginning a modified exercise program will not only aid in maintaining your independence, but could help with quality
of life and improve cardio vascular system.
3. Pain reduction
A. Pacing yourself
B. Time your activities
C. Schedule your goals so you do not have a tendency to overdue for that
time period
D. Work on breathing
E. Medications
F. Physicians as resources
G. Injections
H. Tense Units
I. Spinal cord stimulators
J. Morphine Pump
K. Surgeries
L. Improve sleep habits
1. Set a routine before going to bed and try to be consistent with it
2. Try orthopedic beds
3. Try to limit naps during the day
4. Managing Stress
A. Find distractions from stress
1. Movie or a book
2. projects
3. Entertainment (Music is a good stress reliever)
4. Socialize
Thank you Sheila Kilgore for taking notes for us.
my day! I was so happy to see each and everyone of you. Our guest was very
informative. I believe each of us went away with some new knowledge of exercise at
home to help with the pain and stress. Below you will find a outline of Dr Davis's
presentation.
A synopsis of the presentation from Dr. Anita Davis
Here are the key points that were brought out in the presentation:
1. Using exercise as a mechanism for maintaining independence.
A. Weights and resistance bands
B. Aquatic exercise
C. Modified aerobics
PPS patients should try to keep accelerated heart rate no more than 60% of normal rate.
The equation to determine this is 220-your age x 60.
1a. Managing fatigue is just as important as managing exercise. If you cannot do your normal routine the
next day, you might want to consider cutting your exercise program down. Exercise 2-3 times a week.
1b. The way to stay with an exercise program:
a. Set goals
b. Schedule you exercise time in your planner
c. Realize that it might take up to 12 weeks to see any
results so stay with it.
2. Work on steadier breathing
A. Make sure you are breathing during your exercise program and not
holding your breath.
B. Try breathing exercises of slow breaths in by mouth and exhaling by
mouth slowly trying to last for at least 4 seconds.
Beginning a modified exercise program will not only aid in maintaining your independence, but could help with quality
of life and improve cardio vascular system.
3. Pain reduction
A. Pacing yourself
B. Time your activities
C. Schedule your goals so you do not have a tendency to overdue for that
time period
D. Work on breathing
E. Medications
F. Physicians as resources
G. Injections
H. Tense Units
I. Spinal cord stimulators
J. Morphine Pump
K. Surgeries
L. Improve sleep habits
1. Set a routine before going to bed and try to be consistent with it
2. Try orthopedic beds
3. Try to limit naps during the day
4. Managing Stress
A. Find distractions from stress
1. Movie or a book
2. projects
3. Entertainment (Music is a good stress reliever)
4. Socialize
Thank you Sheila Kilgore for taking notes for us.
http://www.polioplace.org/front
This link above will open to a new page.
Welcome to Polio Place
Explore the past, the present and help build a promising future for the world’s polio
survivors
You are invited to learn by searching the major sections and sub-sections
and to add your knowledge by Submitting an Artifact or Contacting Us.
This link above will open to a new page.
Welcome to Polio Place
Explore the past, the present and help build a promising future for the world’s polio
survivors
You are invited to learn by searching the major sections and sub-sections
and to add your knowledge by Submitting an Artifact or Contacting Us.
